Good Friends are Hard to Find: CMT feet, Cheetah legs & Time travel It was in the fall of 9th grade, and Yohan had just twisted his ankle, yet again. It was a bad sprain, nothing a couple weeks of icing and crutches wouldn’t cure. But, a bum ankle was just the tip of the…
DetailsYohan’s Foot Surgery – #17 6 months later, he is still crutching around the house. Every time Yohan attempts to walk on the surgically repaired foot, he develops open sores and blisters on the ball of his foot. We were hopeful that the custom-made orthotic would shift his weight to a better, more functional position.…
DetailsYohan’s Foot Surgery- #16 Thanks to all who have asked for an update on Yohan. I’ve been all caught up and preoccupied with the best-selling book, “101 Practical Tips for Dealing with CMT”. If you have not ordered one, do so once you’ve finished reading this post. As a bonus, we are shipping all the…
DetailsThat hairy tarantula crawling around the ranch the other morning would have, by definition, freaked out anyone who suffers from has arachnophobia, a fear of spiders. While it was basking in the sun behind a tire’s worn treads, I so wanted to put it in my palm and pet it, but before I knew it,…
DetailsWhen I received my first pair of eyeglasses in the fourth grade, a vivid and surprisingly clear world unfolded before me. I could actually make out the facial features of the people across the street. Each leaf had a shape, a form, a color, and an outline. Birds in the sky were no longer blurry,…
DetailsYohan’s Foot Surgery #15: Put your “Breast” Foot Forward! What else could possibly go wrong? After the pressure sore on the bottom of Yohan’s foot had more or less healed, his big left toe got infected. At this point, he was finally in a plastic brace instead of a big, bulky walking boot. At…
DetailsYohan’s Surgery #14: Caution: Foot Surgery Can Cause Insanity September 12, 2016 I just took the sanity test on the internet and despite what you might think, I am NOT crazy. According to the quiz, I am sane, which is a huge relief because now I don’t have to take bust and waist measurements…
DetailsYohan’s Surgery #13: Hans, the Finger and the Dike August 21, 2016 Since Yohan had his cast removed last Thursday, I feel like that Dutch kid, Hans, whose dike-plugging skills prevented a disastrous flood from annihilating his village. Here’s why: Dr. Pfeffer told us at least 99 times that when the cast comes off…
DetailsYohan’s Surgery #12: My Spiel about Peel August 16, 2016 False alarm! We thought the cast was coming off, and it did, for about 30 minutes, before they slapped another one right back on his foot. And what’s with adult orthopedics? The available colors are so exceedingly boring! They did offer pink, orange, black, dark…
DetailsYohan’s Surgery #11: How to Make Life “Fun” in a Cast August 3, 2016 So many things can go so wrong when you are in a cast. I’m about to tell you true stories. I wish they were not true, but they are. Here is a glimpse of my everyday chaotic life, which is…
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